Stand Together, Be Strong

After our election, many of you may be scared. I am scared. I love you and care about you, my friends with chronic health problems. This impacts us directly. It impacts so many people.

I am fortunate because I work full time and have health insurance through my work. I know how lucky I am to be able to do this. Many people are not in that position. If you have health insurance through Obamacare, you may be wondering what your future looks like… I do not know the answer to that question. You have every right to be scared and depressed.

However, I can tell you that our country is filled to the brim with people who are not satisfied to sit around while you get your healthcare taken away from you. People who are scared with you. Depressed with you. And absolutely, unabashedly motivated. People who are gearing up to work for you. Work, Work, Work.

While many have been ignored, trampled upon, mocked, belittled, set aside, ostracized, demonized, and marginalized…

While many have fought for Civil Rights, only to fear having them stripped away…

While many have been climbing, finding themselves only halfway up, and wonder if they will be thrown off the wall…

No longer will we be silent. We won’t be quiet. We won’t be tired. We won’t be afraid for long. And no onlooker to these wrongs will stay immobilized. I look to the good people I know and every single one of these people is brimming with an energy I have never seen. Buried beneath the despair and exhaustion that comes from days of nausea and sleep deprivation, waiting to be directed positively towards a society where its citizens don’t have to worry about their healthcare. Where its people aren’t afraid because of the color of their skin. Where members of its community can express their love for one another freely, without prejudice. Where we embrace difference and newness instead of fear it, remembering our founders and ancestors. Where we cherish and care for our surroundings. Where genders are treated equally. Where people who serve this nation are honored. And where money buys things, not power.

This. Will. Not. Break. Us.

I’m back, and here’s what I’m gonna do

If you’d been following my blog posts in the past, you may have noticed I disappeared for a while. That’s because I got really sick, was diagnosed with rheumatoid arthritis, went through a lot of meds to find the right doses and such, etc. It’s been… a ride. But I’m feeling a lot better!

Now I have a new goal. This blog is going to be about putting into words the ways I intend to live life fully with chronic pain/chronic illness, especially (but not limited to) rheumatoid arthritis. When I experience a new procedure or a new medication, I will try to describe it in great detail, because it seems that other people respond to that (see my colonoscopy prep post for evidence; I can’t tell you how heartwarming it is to know that post gave so many people a good laugh). Since I haven’t been blogging for a while, I’ll definitely write some posts and play “catch up” in that regard. For example, I’ll write a post detailing what it’s like to give yourself a Rasuvo injection, because I wish I’d known what that was like before doing it myself! Everyone who has to go through a medical procedure or take a new drug wants to know what it was like for other people. Real people. That’s not too hard, I can provide that! I’m a real person! (waves)

I think living with chronic pain is something that can be done well. It isn’t a death sentence, it isn’t something that has to be an absolute nightmare, though it CAN be at times, and nobody should diminish your pain. Fuck anyone who tries to convince you chronic pain is anything but TERRIBLE. It’s terrible, we all know that. But I am eager to push through that into something different, and I have discovered a lot of ways to really live with these pains. I’m interested in sharing my thoughts with others and look forward to doing so. I hope others will share their thoughts with me, too.

Glad to be back, everyone.